Awesome Girl!

Once again, I can say the babies are doing awesome. I love that I'm able to say that after everything these little guys have gone through! Well I mentioned before that we thought Jaxon had a paralized vocal cord from his surgery, but after the ENT (ear nose and throat) specialist looked at him, he concluded that it's just "sluggish" not completely paralized. But his throat is pretty swollen from reflux which makes it hard for him to swallow and that's why his cry is so soft. So they put him on some reflux medicine and hopefully that helps him out. And Gavin actually has the paralized vocal cord. We were totally shocked when we found that out. But the ENT said that the other vocal cord is compensating well. Which is good. So the OT (occupational therapists) come everday and do little excersises to help them learn to swallow and then they do a swallow study on them and then hopefully they can eat with a bottle soon. We just have to position them a little different when they have a paralized vocal cord, but other than that once they learn to swallow all should be well. Jacee on the other hand is already doing bottles and doing great! They have a protocol for feedings when they learn to take a bottle and she is cruising right along with that. They started her out at one bottle a shift (every 12 hours) and once she does good with that she moves up to two bottles a shift which is where she is at now. Sometimes she gets tired, but overall she is doing really good. There's even mention of her coming home soon. (keep your fingers crossed!) YAY!!!

All three have ROP (retna opathy of prematurity) (have no idea if that is even close to being spelled right!) It's an issue with the eyes, let's just say, and the doctors check their eyes every week because if it gets too bad then they need laser eye surgery to repair it. Right now Jaxon has it the worst and is borderline for needing the surgery, so everyone keep them in your prayers, we don't want surgery again.

Well their weights as of last night are:

Jaxon: 5 lbs 11 oz

Gavin: 5 lbs 10 oz

Jacee: 5 lbs 13 oz (superwoman huh!)

Jacee doing awesome with her bottle!

Jaxon hangin out with his twin (daddy).

Gavin, so excited mom and dad are here!!!

Moving Up!!!

Well this was a very productive weekend for our little cuties! They are all doing bone density exercises with the occupational therapists and doing really good with that. And Gavin had an awesome weekend. He was able to have his first bath! After 11 weeks, it was about time. He loved it! As soon as we laid him in the bath he dropped both hands to his side and just laid there! It was so cute! And he got so relaxed that he pooped right in the bath! That's the good thing about the swaddled bath, all we had to do was unwrap the blanket and the yummy poop went with it. =)And of course he didn't especially care for the washing part, but I think it was an overall good experience for him. Gavin also got to come off the high flow cannula and is now on a regular flow and doing awesome. Yay!!! And Jaxon's little NEC scare is over, he's off his antibiotics and IV's and has started his feeds again and is doing great. Jacee is still doing wonderful. She is doing great at nursing, getting better at it everyday. I actually get to try and nurse all of them now. (can we say overwhelming) I've decided to just take turns, I go down to the hospital twice a day now so I can nurse two then, and then when I go back I can nurse the other one. And I'm waiting on nursing Jaxon right now because we think he might have a paralized vocal cord from his little heart surgery. We knew it could happen, and his voice is just quieter than the other two's. But we actually should find out today if it is because the specialist comes today. And when they have a paralized vocal cord it can be harder to swallow so I want to wait and see what the doctors determine before I nurse him.

We also moved rooms. We are now out of the most critical rooms and are in the rooms with the other "big" babies. Just kinda watching them grow now. Yay!!! We like this part. I can't believe it's already been 12 weeks. I never thought I'd say that, but it has gone by fast.
Alright, well their weights as of last night are: (your gonna be shocked!)

Jaxon- 5 lbs 9 oz 17 1/2 in
Gavin- 4 lbs 15 oz 16 1/2 in

Jacee- 5 lbs 4 oz 17 1/2 in

Awesome huh!!!

Jaxon sleeping.

Jaxon lovin his binki.

Gavin lovin his bath.

Gavin completely relaxed...

Gavin's naked bum picture..they're gonna be so proud of me for these pics when they get big! =)

Gavin snoozin.

Princess Jacee

Jacee looking at daddy.

Happy Valentines Day!!!

Hello everyone!!! The babies are doing great still. Gavin was able to come off CPAP last week and is on high flow nasal cannula and doing wonderful. He loves not having all that stuff on his face! He is also a stud muffin. Pretty sure all three are gorgeous if I do say so myself!!! I'm able to start trying to nurse Jacee and she is doing great! She can suck, swallow and breathe, she just has to figure out how to do it all at the same time! =)And Jacee is indeed a princess. She has figured out that she likes to be held and if she cries then she gets to be held. So she cries and as soon as someone picks her up she stops immediately. Spoiled already! And she's got some lungs! One time I called to check on them and I could here her screaming in the background and the nurse said "Do ya hear your little princess?" But I love that she's spoiled. They take really good care of them at the hospital! The boys try the crying thing too, but I don't think as often as Jacee. =) I was visiting them on Sunday by myself and the nurse had left for lunch so it was just me, and I had been trying to nurse Jaxon for the first time and he had fallen asleep so I was just holding him and Jacee starting crying (screaming) so I put Jaxon back in his crib and picked up Jacee (who of course snuggled right in my shoulder and stopped crying) but then Jaxon starting crying and then of course Gavin started in on it too! I just kept looking at each of them trying to figure out I was suppose to do. WOW! Can we say reality check!!! I was sooooo overwhelmed, but pretty sure I better get used to that! =)

Well they thought that Jaxon might be getting a stomach infection(NEC) that can be pretty serious so they immediately stopped his feedings and started him on antibiotics. It turns out that it looks like he probably didn't have it, probably some sort of stomach virus instead. But as far as NEC is concerned,better safe than sorry and I'm glad that the doctors acted fast. He is getting all his nutrients through and IV and hopefully can start eating again soon. But he is still doing great. He's a trooper!

Their weights as of last night are:

Jaxon: 4 lbs 15 oz

Gavin: 4 lbs 6 oz.

Jacee: 4lbs 13 oz.

Getting big!!!!

Jaxon

Daddy & Jaxon

Gavin

Mommy & Gavin

Jacee

Jacee relaxing after her bath. (she got her 2nd bath last night YAY!)

And thanks Maureen for these pictures since we forgot our camera last night!!! =)

Scrub-a-dub-dub...

Jaxon and Jacee were able to have their first baths finally!!! Jaxon had his on Tuesday and Jacee had hers last night. Their faces were pretty funny. You could tell they liked it, but were trying to figure out what the heck was going on. They didn't really care for the washing part, they probably would have rather just laid back and relaxed but we had lots of fun! We keep them swaddled with a thin blanket during the bath so that they still feel a bit contained so that it's not too overwhelming. It sounds like Gavin is close to coming off CPAP and getting on the nasal canula so his bath shouldn't be too far off, hopefully!

As of last night Jaxon weighed 4 lbs 11oz, Gavin weighed 4 lbs 2oz, and Jacee is 4 lbs 3oz!!!

Jaxon's first bath...

not too happy...

not too bad now...

squeaky clean... =)

Jacee's first bath...

"what the heck is going on?"...

Not happy...

Naked bums!!! oh how cute...

Jaxon

Jacee

And yes, Gavin is still just chillin on CPAP!!!

4 is such a wonderful number!

Another milestone last night! Gavin hit 4 lbs!!! So now all of the babies are in the 4 pound range. As of last night Jaxon was 4 lbs 6 oz and 16 3/4 in, Gavin was 4lbs and 16 1/2 in, and Jacee was 4 lbs 3 oz and also 16 1/2 in. They are all doing awesome! In fact over the weekend Jacee was able to come off CPAP and is just on a nasal canula. She even passed up Jaxon, he is on a high flow nasal canula and she is on just a regular flow. She just woke up one day and said,"Hey this breathing thing isn't so hard!" =) And Gavin is doing great on the CPAP they are even weaning him off a bit too.

And before this weekend Jaxon and Jacee were in the same room and Gavin was just across the hall, but they moved Gavin in with the other two now. So YAY back together at last. They seem to talk to each other through their monitors, if one monitor goes off the other two seem to start going off too! Poor nurses! But I can't feel too bad for them because they get to leave after 12 hours, all three are coming HOME with us!!! (Which I am very excited for!!!)

So this was a very progressive weekend, which was very good! Pressing forward everyday! Our little miracles!!!!!!!!!!!!

Well here's the latest pictures...

Jaxon's nose has been really dry and sore from the CPAP and the high flow nasal canula so this hood puts humidity in the air to see if they can help with the dryness.

Gavin still just chillin on CPAP!

And our little Princess!!!!

Introducing....

The babies are doing great today! Yesterday Jaxon was able to move off of CPAP and get on to a high flow nasal canula (I can't spell!). YAY!!! He is doing great on it, so much more comfortable than all that CPAP gear! And now we can see his face again, and he sure is a stud muffin!!! He has a ton of hair so daddy combed it in a mohawk last night! Sorry Maureen! =)

Jacee and Gavin are still on the CPAP, but they are doing great!!!

Jaxon...4lbs 4oz

Gavin...3lbs 9oz

Jacee...3lbs 13oz (She's down a little because they weigh her without all the CPAP gear on now)

I added some slideshows yesterday. I know it's a lot to look at, but I wanted to show some pictures of how far they've come and how great they are doing!

Gavin just chillin!

Jacee getting a break from CPAP.

Hello All!!!

Well the babies are doing great! Getting bigger everyday. All three are now on CPAP which is great. That means they are having to breathe on their own, they are no longer on the ventillator which was a huge milestone for us! Yesterday was their two month birthday, and I never thought I would say this, but it has gone by pretty fast. I can't believe we've had them here for over 8 weeks! They have some great nurses which helps us out a lot! :)

Okay, well Jaxon is now 4 lbs. 2 oz. Which means he gets to be in a crib now! He was starting to look so big in his isolette but now that he is in a crib he looks small again! :) He also gets to wear clothes now, it's soooo cute! And he gets to be swaddled in the blankets and he loves it! Our little burrito! Jaxon has been on CPAP since January 1st, so I'm anxious for him to get off it. We haven't really got to see his face without something on it since then, and I'm sure a lot has changed in 28 days!

Gavin is now 3 lbs. 4 oz. He is doing great on CPAP! Which makes us soooo happy. He's given us the most "trouble" so it's nice to see him doing good off the ventillator. He doesn't seem to mind the CPAP too much. I'm sure it feels much better than being rattled all the time by the oscillator from the vent. We also got to hold him for the first time this weekend. He was always so tempramental so we were never able to hold him. So finally after 8 1/2 weeks, we were able to hold him, and he loved everyminute of it (so did we) if I do say so myself! :)

And Jacee is now 3 lbs. 15 oz. She also gets to be in a crib and wear clothes now. So cute!!! Usually when they are 4 lbs. they get to be in a crib, and she is close enough and can maintain her body temperature so she got put in one yesterday. Yay!!! She doesn't care for the CPAP. She tries to rip it off every chance she gets! But I thinks she's starting to get used to it now. :)

And Dax went on a fieldtrip last week with his preschool. They went to the Union Station. He had lots of fun!!!

Well, that's about it for today. I really am going to try to update this often, really! Please feel free to leave comments, we love to read them! And tell anyone you want about this blogpage, I know a lot of people ask about these cuties!!!! And thanks for everyones thoughts and prayers! We appreciate it more than you all know.